Do Patient Preferences Really Matter?  An Important Advocacy Issue for Family Caregivers

Do Patient Preferences Really Matter? An Important Advocacy Issue for Family Caregivers

The healthcare industry is abuzz with “Quality of Life”.  There’s tools, measures and even financial incentives dedicated to Quality of Life goals and outcomes. So, we’re good, right?  The system is listening.  Umm, not so fast! What Family Caregivers Need to Know. Going Through the Motions…What Should We Expect? Do the doctors, nurses, etc. you and your loved one(s) encounter ask about things like: What are your health goals?  In other words, what do you want to be able to do/enjoy on a daily basis? Are there things you never want to experience?  What are those things? Is your condition impacting your life?  Are you less happy?  What makes it hard to cope with it day-to-day? What worries you? Or, have you and/or your loved one been handed a Quality of Life questionnaire to complete?  And, did anyone go over the answers to get a better understanding? Let me share a story with you.  I recently accompanied a family on an important meeting with their doctor, to […]

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